MDS UK Support Group helps anyone affected by MDS or CMML
Providing reliable information, support and a chance to connect with leading UK specialists in MDS & CMML at online Support meetings
Are you newly-diagnosed ?
Try our 'Quick Links Guide' to go straight to the pages, that we believe are the most useful in those early days following diagnosis.
Questions to ask your healthcare team
It's easy to get overwhelmed by some of the complex information at your appointments. Use this pre-prepared list of questions to help you get the answers you need.
Questions to ask your healthcare team
It's easy to get overwhelmed bintments. Use this pre-prepared list of questions to help you get the answers you need.
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New MDS Guide (2024)
A downloadable comprehensive MDS Guide for patients, families and care-givers which describes the various types of MDS, diagnosis, treatment and more. Co-written by the MDS UK Patient Support Group and Leukaemia Care, this guide is a brand new edition (April 2024).
If you'd prefer a hard copy, email us at admin1@mdspatientsupport.org.uk and we'll be happy to post one out to you.
Patient Stories
Lynne Elliot
Upcoming Events
There are no upcoming events at this time.
Latest MDS news & updates
MDS UK Members Facebook Group
Share and get support
MDS UK Public Facebook Page
For news & info about MDS/CMML
MDS UK Patient Support Group is a registered member of the ICO (Registration no: ZB332063)
MDS UK Patient Support Group is a founding member of the MDS Alliance, the international umbrella group for all national support groups. The MDS Alliance is dedicated to sharing and improving information and awareness between patients, globally.
MDS UK Patient Support Group is a registered charity (Registered charity No: 1145214)